I will be there joff... perfect day for me! I still haven't heard anything back from my school as yet... But will pressure them for an answer today. Sounds like a great course! Maybe someone should go to bakers delight or a commercial bakery like that to get some bread???
If you need anything done, pm me and i'll give it a shot!
Cheers
The walk for Epilepsy Awareness i need your help!!
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leelee
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madman
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Joffa and anyone involved in this operation are in my book "Lengends"
i am someone that has suffered from epilepsy for 17yrs (i am 32). i take mediction for it everyday of my life. While i don't have a serious case of epilepsy, but when i have a seizure it hits hard, i have been lucky i have only had 5 seizures in 10 years.
For people that don't have epilepsy (which would obviously be most people) i will give up a quick insight on what it is like to have a seizure. When i have a seizure i pass out, during the seizure (which obviously i have no control over) i bite my tongue so hard that half the tongue will turn purple (which lasts for a couple of days). When i come to, i can bearly talk, i have no idea of what is going on around me. Then i need to be taken to hospital via ambulance (and i need to be carried by someone to the ambulance cause the seizure hits me so hard that i am unable to walk). Once at hospital the good doctor looks after me. After sending most of the day at the hospital i will come home, it usually takes about 6 hrs before i can start to think straight and walk on my own. Once i get home most of my body will start to ache, when i have a seizure i must strain the muscles i my legs and arms cause i feel bloody sore and i also feel very light headed. It is not until the next day that i start to recover. For at least 4 days i will not be able eat correctly because my tongue is so bruised. It generally will take about 5 days before i am back to more normal, having a seizure just drains me of so much energy.
But for someone like myself that does not have a bad case of epilepsy, i don't look any different or act any different any other person that walks down the street. Since turning 18 right up to now i still go down to the pub, always go to the Collingwood games, i drive a car and have a great job. The main thing people need to know about epilepsy is how to look after someone when they are having a seizure.
Anyway that is my rant over. GO PIES
i am someone that has suffered from epilepsy for 17yrs (i am 32). i take mediction for it everyday of my life. While i don't have a serious case of epilepsy, but when i have a seizure it hits hard, i have been lucky i have only had 5 seizures in 10 years.
For people that don't have epilepsy (which would obviously be most people) i will give up a quick insight on what it is like to have a seizure. When i have a seizure i pass out, during the seizure (which obviously i have no control over) i bite my tongue so hard that half the tongue will turn purple (which lasts for a couple of days). When i come to, i can bearly talk, i have no idea of what is going on around me. Then i need to be taken to hospital via ambulance (and i need to be carried by someone to the ambulance cause the seizure hits me so hard that i am unable to walk). Once at hospital the good doctor looks after me. After sending most of the day at the hospital i will come home, it usually takes about 6 hrs before i can start to think straight and walk on my own. Once i get home most of my body will start to ache, when i have a seizure i must strain the muscles i my legs and arms cause i feel bloody sore and i also feel very light headed. It is not until the next day that i start to recover. For at least 4 days i will not be able eat correctly because my tongue is so bruised. It generally will take about 5 days before i am back to more normal, having a seizure just drains me of so much energy.
But for someone like myself that does not have a bad case of epilepsy, i don't look any different or act any different any other person that walks down the street. Since turning 18 right up to now i still go down to the pub, always go to the Collingwood games, i drive a car and have a great job. The main thing people need to know about epilepsy is how to look after someone when they are having a seizure.
Anyway that is my rant over. GO PIES
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Pa Marmo
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Onya Madman, and thanks for sharing that with us. I also suffered with epilepsy but I am considered one of the fortunate ones. I was diagnosed with epilepsy as an infant and spent my young years in fear of this horrible thing happening to me. i am so grateful to be able to say i have not suffered a seizure since I was 11 years old and I am now pushing 40.
My heart goes out to all who live with this affliction and I cant wait to get out there and make the "Joffa Walk for Epilepsy Awareness" a major success.
My heart goes out to all who live with this affliction and I cant wait to get out there and make the "Joffa Walk for Epilepsy Awareness" a major success.
Genesis 1:1
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jeff corfe
Fantastic post mate i dont consider it a rant.. great for you to share all that with us.madman wrote:Joffa and anyone involved in this operation are in my book "Lengends"
i am someone that has suffered from epilepsy for 17yrs (i am 32). i take mediction for it everyday of my life. While i don't have a serious case of epilepsy, but when i have a seizure it hits hard, i have been lucky i have only had 5 seizures in 10 years.
For people that don't have epilepsy (which would obviously be most people) i will give up a quick insight on what it is like to have a seizure. When i have a seizure i pass out, during the seizure (which obviously i have no control over) i bite my tongue so hard that half the tongue will turn purple (which lasts for a couple of days). When i come to, i can bearly talk, i have no idea of what is going on around me. Then i need to be taken to hospital via ambulance (and i need to be carried by someone to the ambulance cause the seizure hits me so hard that i am unable to walk). Once at hospital the good doctor looks after me. After sending most of the day at the hospital i will come home, it usually takes about 6 hrs before i can start to think straight and walk on my own. Once i get home most of my body will start to ache, when i have a seizure i must strain the muscles i my legs and arms cause i feel bloody sore and i also feel very light headed. It is not until the next day that i start to recover. For at least 4 days i will not be able eat correctly because my tongue is so bruised. It generally will take about 5 days before i am back to more normal, having a seizure just drains me of so much energy.
But for someone like myself that does not have a bad case of epilepsy, i don't look any different or act any different any other person that walks down the street. Since turning 18 right up to now i still go down to the pub, always go to the Collingwood games, i drive a car and have a great job. The main thing people need to know about epilepsy is how to look after someone when they are having a seizure.
Anyway that is my rant over. GO PIES
Just the other night we were all out at dinner at a pizza restaurant i noticed emma getting the shakes every ten minutes or so from experience and living with emma's epilepsy all her life i knew she was about to have a full on seizure
We got her home and orderd her to lay down on the couch some fifteen minutes later emma had a full tonic clonic seizure that is when somone loses consciousness stiffens unexpectedly and falls to the ground jerking, in the process emma fell to the floor grazing her face and biting her tongue which resulted in a nasty cut..thank god for Bongela cream.
When emma was convulsing on the floor her boyfriend rushed to put her on her back he thought he was doing the ok thing but the fact is if anyone witnesses another person having a seizure please ensure you place the person onto one side which will ensure the person doesnt choke on vomit or any articles of food in mouth prior to the seizure.
Never place anything in the mouth when someone is having a seizure especially no fingers.....and dont listen to the old grandmothers tale that you gotta chuck a spoon in to stop the person swallowing the tongue..laying the person onto one side will prevent this.
Cheers madman thanks for sharing your story.
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jeff corfe
Without your assistane mate it would be fair to say we would not be having a walk.nuxta wrote:Onya Madman, and thanks for sharing that with us. I also suffered with epilepsy but I am considered one of the fortunate ones. I was diagnosed with epilepsy as an infant and spent my young years in fear of this horrible thing happening to me. i am so grateful to be able to say i have not suffered a seizure since I was 11 years old and I am now pushing 40.
My heart goes out to all who live with this affliction and I cant wait to get out there and make the "Joffa Walk for Epilepsy Awareness" a major success.
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jeff corfe
Sunday 29th October 10am
Leaving Victoria Park Lulie St Abbotsford
Walking up Johnson St to Lygon St
Lygon St to Victoria Parade
Then up to Victoria Market.
Walking through the Market to Peel St
Then back in to the City down Swanston St
To StKilda Rd
Along the river to Casino then
through Sth Melb to Albert Park Lake.
Walk will take 3 to 4 hours maybe 5 hours we're all open for a chat along the way.
Barby at the Lake say 3pm....all welcome to join in at any stage during the walk.
Now we've got that organised it will give us time to concentrate on funds/ sponsorships etc etc...and other activities.
Leaving Victoria Park Lulie St Abbotsford
Walking up Johnson St to Lygon St
Lygon St to Victoria Parade
Then up to Victoria Market.
Walking through the Market to Peel St
Then back in to the City down Swanston St
To StKilda Rd
Along the river to Casino then
through Sth Melb to Albert Park Lake.
Walk will take 3 to 4 hours maybe 5 hours we're all open for a chat along the way.
Barby at the Lake say 3pm....all welcome to join in at any stage during the walk.
Now we've got that organised it will give us time to concentrate on funds/ sponsorships etc etc...and other activities.
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leelee
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I'll do anything to help out Joff. Numerous cousins of mine have epilepsy, some were diagnosed very young, but one of my cousins wasn't diagnosed until she was into her 20's. Needless to say, she has a good life and a beautiful son who hasn't got epilepsy. Its great to hear your stories guys, even though it can be painful!
I can see this being a HUGE success! Some people from my school are already asking me for the info!
I can see this being a HUGE success! Some people from my school are already asking me for the info!
SuCK IT uP PRINCESS
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leelee
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Its gonna be more than a TOP day! I still haven't heard back from my school yet, but am going to ask my dads company, and a friends business for sponsorship (friends business is my grandpa's old pharmacy, he'd be into supporting this!!!!!)
I'm still trying to get some ideas... been talking with some friends at school, nothing as yet, but we'll come up with something sooner or later!
I'm still trying to get some ideas... been talking with some friends at school, nothing as yet, but we'll come up with something sooner or later!
SuCK IT uP PRINCESS
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jeff corfe
Thanks Leeleeleelee wrote:Its gonna be more than a TOP day! I still haven't heard back from my school yet, but am going to ask my dads company, and a friends business for sponsorship (friends business is my grandpa's old pharmacy, he'd be into supporting this!!!!!)
I'm still trying to get some ideas... been talking with some friends at school, nothing as yet, but we'll come up with something sooner or later!
We have a letter of authorisation to do this from epilepsy foundation of Victoria if you need a copy please give me a yell it makes people feel better to know its all official and above board.
We also have ' flyers ' printed leelee if you need some im quite happy to meet you at the footy on sunday or send them to you via the post
once again your enthusiasm is a godsend
cheers
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leelee
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The letter would be fantastic, just to reassure the school. You can send it to lee_lee15@hotmail.com
or i can pm you my address.
or i can pm you my address.
SuCK IT uP PRINCESS
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jeff corfe
Send a PM leelee and i'll send a copy of the authorisation notice and some official flyersleelee wrote:The letter would be fantastic, just to reassure the school. You can send it to lee_lee15@hotmail.com
or i can pm you my address.
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jeff corfe
Fantastic news Norm thats our first official sponsor well done..i've got a feeling we're close to snaring a major sponsor pretty soon...lets hopenuxta wrote:We have a sponsor for the bread at the BBQ after the walk. Thanks to Michael Routley of Routley's Bakeries.
C'mon guys fire up for this one its going to be a top day.
Oh yeah.....BUY A NICKS BADGE